Our Specialty Pharmacies have nine Therapeutic Resource Centers with disease focused, specialty trained clinicians. Within those TRCs, our thirteen Specialty Care Management programs, called CareLogic® provide disease-focused clinical interventions by specialized clinicians, including:
- Patient assessments
- Proactive adherence support
- Outcomes tracking
- Patient advocacy and education
- Detailed reporting
- Support for the prescriber-patient relationship and plan of care
A bleeding disorder is a condition that prevents the blood from clotting properly. There are several types of bleeding disorders, including hemophilia, von Willebrand disease, and other, very rare factor deficiencies. These disorders can range from mild to severe, and most are inherited at birth. Normally, there are proteins or factors present in the body that work together to form a blood clot. In individuals with bleeding disorders, one or more of these factors do not work properly or missing. This can lead to slow clotting after accident or injury, and increased blood loss. Bleeding disorders are most commonly treated by replacing the missing factor in the blood, also known as factor replacement therapy. People with bleeding disorders work with their doctors to determine the best course of therapy.
Hemophilia is an inherited bleeding disorder that occurs when a person has too little of a certain clotting factor, or is missing a factor altogether. This causes the blood to clot slowly, leading to prolonged bleeding. Although there is currently no cure for hemophilia, most cases can be managed with factor replacement therapy and other treatments. The most common types of hemophilia are hemophilia A and hemophilia B. People with hemophilia A have low levels of factor VIII, while those with hemophilia B are missing factor IX. Hemophilia A is the most common. About 400 babies each year are born with hemophilia in the United States, almost all of them male.
Von Willebrand disease is the most common inherited bleeding disorder. It affects males and females equally. Von Willebrand disease occurs when a patient has low amounts of von Willebrand factor in his or her blood. In most cases, the condition is mild and may require no treatment. Treatment may be necessary after surgery, a dental procedure, or an accident. Treatment could include medication to help the body make more von Willebrand factor to promote clotting; medications to prevent the body from breaking down clots, or replacement of von Willebrand factor in the blood. Once von Willebrand disease is diagnosed, your doctor will work with you to determine the treatment that’s best for you.
Living with and managing a bleeding disorder can be a considerable challenge. Our CareLogic program for Bleeding Disorders provides clinical support and empowers you with the knowledge to manage your disease and medication effectively.
Our CareLogic program for Bleeding Disorders includes:
• Toll-free access to licensed pharmacists for urgent needs 24 hours a day, seven days a week
• Toll-free access to clinical nurses specially trained in hemophilia and other bleeding disorders
• Calls from healthcare professionals to discuss your progress and anything that may affect your health; to detect any new symptoms or medication side effects, and help you take your medicine correctly to receive the greatest benefit from it
• Mailed education materials and access to Accredo websites that can help you manage your condition
• Coordination with Patient Assistance Programs that offer financial help
• Access to on-staff social workers who can provide emotional support and help identify community assistance programs in your area
There are many organizations that can give you more information about bleeding disorders. Some of them are: